Tuesday, December 22, 2009

What to Track: Euphoria?

Sometimes I wake up in the morning feeling great. Almost euphoric. I used to love that feeling. It feels as if nothing in the world is wrong.

But I've learned from too many experiences....when that great feeling strikes, so too do seizures. Has anyone else ever experienced that? I know some of you have. I remember sitting in an adult support group listening to everyone speak, and almost half the group experienced the same thing.

I'm not sure if there is a medical explanation for it, but isn't that just so typical of this disease? We just can't let our guards down for a minute....

Monday, December 21, 2009

What to Track: Lights

After tracking my seizures now for three years with EpiTrax, I have begun to see a pattern in work environments. Basically, I was having more seizures on Monday and most in the morning, right after I got to work.

I asked my doctor about this and he mentioned that some people have reflex seizures caused by computer screens or even fluorescent lights. I investigated a little more and here is what I found on epilepsy.com:

Reflex epilepsies are a group of epilepsy syndromes in which a certain stimulus brings on seizures. The stimulus can be something simple in the environment or something more complex like reading, writing, doing arithmetic, or even thinking about specific topics.

The types of seizures that may occur are varied, but 85% are generalized tonic-clonic (grand mal) seizures. Other seizure types include absence seizures (staring) and myoclonic seizures (jerking of the eyes, head, or arms).

The most common form of reflex epilepsy is photosensitive epilepsy, in which flashing lights trigger seizures. These seizures are usually found to be primary generalized seizures. Occasionally, partial seizures (arising from a small portion of the brain) may also present as a reflex epilepsy.

Does anyone else experience these?